Hey there I'm Mily, 20, Canadian ;D
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riverdoge:

Man this series makes no fucking sense

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

diaemyung:

Have a great day

danslailleurs:

satouhachimitsuaisutea:

and-then-theres-haley:

kawaiidisneygirl:

unironicgoth:

HE TALKED TO ME

I THOUGHT DEER DIDN’T MAKE SOUND OH MY GOSH THIS IS ADORABLE

"YOU ARE SO CUTE"
"NEH!"

CAUSE OF DEATH: CUTENESS

JOEY LOOK IT’S US

carpeumbra:

kittengrin:

kittengrin:

carpeumbra:

kittengrin:

carpeumbra:

Fifty Shades of Domestic Abuse

50 Shades of Damaging Stereotypes 

Fifty Shades of Wanna Guess How Many People Will Be Hospitalized Due To Flesh Wounds From Improper Knots After The Movie?

50 Shades of Glorified Abuse

50 Shades of Kidney Damage from Incompetent Crop Use

Fifty Shades of Pathological Violence Due To Past Trauma Isn’t Kink

sofriel:

tickatocka:

a kitten trying super hard to fight a ceramic cat statue

THANK U 4 THIS

archiemcphee:

We aren’t sure how it happened, but Godzilla appears to have gotten stuck while walking through the gardens of Tokyo Midtown. He’s only visible from about the waist up (Godzilla has a waist, right?) along with a portion of his tail. But at 6.6 meters (~22 feet) tall, he’s still an awesome sight to behold, even more so at night when the lights and smoke machines turn on. And then the spikes on back light up as well, as though a surge of electricity is traveling down them. So awesome!

This statue was built to celebrate the 60th anniversary of the original Godzilla as well as the Japanese release of the new Godzilla film. The King of the Monsters will be stuck in this Tokyo Midtown park until the end of August. So if you’ve ever wanted to give him a hug, now’s your chance.

Photos 1-3 by Héctor García, 4-6 by Zan Woo.

[via Kuriositas and Kotaku]

hythe:

Each workout lasts the length of the song paired with it. So put on your sports anime playlist and let’s go!

You don’t need ANY equipment for this routine - heck, you can do this in bare feet and pajamas if you want to! It doesn’t take much room, either, so it’s perfect if you’re stuck in a tiny dorm or otherwise small living space.

Try to rest as little as possible between each move to finish when the song does. If you find yourself wanting to quit, don’t give up! Remember, Onoda didn’t quit when he had to pass 100 other racers to reach the rest of Sohoku, and neither did Seirin when they were facing Yosen and it seemed like all was lost. Push yourself to be the very best you can be!

PLAYLIST

Cardio: Yowamushi Pedal - "Be As One"
Strength: Kuroko no Basket - "Fantastic Tune"
Freestyle: Free! Iwatobi Swim Club - "Rage On"
Launch: Haikyuu!! - "Tenchi Gaeshi"

And if you’ve still got energy left and feel like you can keep going, feel free to hit the bonus round:

Cardio Burnout: Shingeki no Kyojin - "Guren no Yumiya"

It’s not sports anime, but you will feel like a total badass who can slay Titans by the time you’re done.

its-tuesday-again:

WHAT THE FUCK IS WRONG WITH STRAIGHT BOYS

sh8-bit-angora:

needthisbook:

Ten Major Artists:

Wong Wong & Lu Lu

Wong Wong & Lulu

Pepper gazing into the mirror before a self-portrait

Pepper examining himself before commencing a self-portrait

Pepper painting his self-portrait

Pepper’s self-portrait

Tiger

Tiger the spontaneous reductionist

Misty in action

Misty goes off the wall

Minnie: abstract expressionist

Minnie, the abstract expressionist

Minnies finished work

Minnie’s Reindeer in Provence, 1992.

Smokey contemplating

Smokey painting after an hour in the catnip patch

Smokey painting after an hour in the catnip patch

Smokey at work

Ginger's 'Stripped Bare Birds', 1992.

Ginger’s Stripped Bare Birds, 1992.

Princess' 'Regularly Ridiculed Rodents', 1993.

Princess, the elemental fragmentist

Charlie the peripheral realist

Charlie, the peripheral realist

this literally makes me so happy

vinebox:

Watching Pokémon on Saturday mornings as a kid

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